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Specific Medical Condition Organizations
AIDS/HIV
Alzheimer’s
Arthritis
Asthma
Cancer
Depression
Diabetes
Heart Disease
Kidney Disease
Memory Loss
Mental Illness
Multiple Sclerosis
Parkinson’s disease
Stroke
AIDS/HIV
- The HIV/AIDS Information Outreach Project
1216 Fifth Avenue
New York, NY 10029
1-212-822-7323
www.aidsnyc.org
A service of the New York Academy of Medicine Library, providing information to HIV and AIDS-related, community-based organizations in the New York Area.
- Gay Men's Health Crisis
119 West 24th Street
New York, NY 10011
1-212-367-1000
www.gmhc.org
Gay Men's Health Crisis (GMHC) is a not-for-profit, volunteer-supported and community-based organization committed to national leadership in the fight against AIDS.
- AIDS Treatment Data Network
611 Broadway ?Suite 613
New York, NY 10012
1-212-260-8868
www.atdn.org
The AIDS Treatment Data Network (The Network) is an independent, community-based, not-for-profit, organization that provides treatment access and advocacy, case management, supportive counseling, and English and Spanish language information services to men, women and children with AIDS and HIV, and limited resources.
- Harlem United Community AIDS Center
123-125 West 124th Street
New York, NY 10027
1-212-531-1300
www.harlemunited.org
Mission is to provide quality HIV prevention and care services in a safe environment while uniting the diverse communities of Harlem in order to address all needs of people living with and threatened by HIV and AIDS.
- New York AIDS Coalition
231 West 29th Street - #1002
New York, NY 10001
1-212-629-3075
www.nyaidscoalition.org
The New York AIDS Coalition (NYAC) is an alliance of community-based service providers and their supporters working for increased funding and fair policies for people living with HIV/AIDS in New York State.
- God’s Love We Deliver
166 Avenue of the Americas
New York, NY 10013
1-212-294-8100
www.godslovewedeliver.org
God's Love We Deliver's mission is to improve the health and well-being of men, women and children living with HIV/AIDS and other serious illnesses by alleviating hunger and malnutrition. They prepare and deliver nutritious, high-quality meals to people who, because of their illness, are unable to provide or prepare meals for themselves.
- National AIDS Treatment Advocacy Project
580 Broadway
New York, NY 10012
1-212-219-0106
www.natap.org
Mission is to educate individuals about HIV and Hepatitis treatments and to advocate on the behalf of all people living with HIV/AIDS and HCV.
Alzheimer’s (Also, see section on Memory Loss)
- Alzheimer's Association
919 N. Michigan Avenue
Chicago, IL 60611
1-800-272-3900
www.alz.org
Referrals to local chapters, which then refer people to caregiver support groups
- Alzheimer's Association ?New York City Chapter
360 Lexington Avenue ?5th Floor
New York, NY 10017
1-212-983-6906
www.alzheimernyc.org
- Alzheimer’s Disease Education & Referral Center
ADEAR CENTER, P.O. Box 8250
Silver Spring, MD 20907
1-800-438-4380
www.alzheimers.org
A service of the National Institute on Aging.
Arthritis
- Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357
1-800-283-7800
www.arthritis.org
A national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
- Arthritis National Research Foundation
200 Oceangate ?Suite 830
Long Beach, CA 90802
1-800-588-CURE
www.curearthritis.org
Research funding to find a cure for each of the 100 forms of arthritis.
- ArthritisInsight.com
www.arthritisinsight.com
Factual information and tips about arthritis. Message board.
- Arthritis.com
www.arthritis.com
Information regarding osteoarthritis, rheumatoid arthritis, and other forms of the disease. Sign up for a free newsletter, test your knowledge, or refer to the site's symptom checklist.
Asthma
- Allergy & Asthma Network - Mothers of Asthmatics
2751 Prosperity Avenue - Suite 150
Fairfax, VA 22031
1-800-878-4403
www.aanma.org
A national, nonprofit membership organization dedicated to eliminating suffering and death due to asthma and allergies through education, advocacy, community outreach, and research.
- American Lung Association
61 Broadway - 6th Floor
New York, NY 10006
1-800-548-8252
www.lungusa.org
A national voluntary health organization that fights lung disease, with a focus in asthma, tobacco control, and environmental health.
- Association of Asthma Educators
1215 Anthony Avenue
Columbia, SC 29201
1-888-988-7747
www.asthmaeducators.org
The primary goals of this organization are to promote education as an integral comprehensive asthma program, to raise the competence of health care professionals who educate individuals and families affected by asthma, and to raise the standard of care and quality of asthma education delivered to those with asthma.
- Asthma & Allergy Foundation of America
1233 20th Street, NW, Suite 402
Washington, DC 20036
1-202-466-7643
www.aafa.org
A non-profit organization dedicated to improving quality of life for people with asthma and allergies and their caregivers, through education, advocacy, and research.
- National Asthma Education and Prevention Program
National Heart, Lung & Blood Institute
P.O. Box 30105
Bethesda, MD 20824
1-301-592-8573
www.nhlbi.nih.gov
A part of the National Heart, Lung, and Blood Institute, this program was initiated to address the growing problem of asthma in the United States. Goals of the program include: to raise awareness that asthma is a serious chronic disease, ensure the recognition of the symptoms of asthma, and ensure effective control of asthma.
Cancer
- American Cancer Society ?New York Office
19 West 56th Street
New York, NY 10019
1-212-586-8700
1-800-ACS-2345
www.cancer.org
The American Cancer Society is the nationwide community- based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
- Association of Cancer Online Resources
173 Duane Street ?Suite 3A
New York, NY 10013
1-212-226-5525
www.acor.org
A free collection of on-line resources designed to provide timely and accurate information in a supportive environment.
- Cancer Care, Inc.
275 Seventh Avenue
New York, NY 10001
1-800-813-HOPE
www.cancercare.org
Free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance
- Cancer Information Service
1-800-4-CANCER
www.cancer.gov
Callers are provided with answers to questions about cancer; given tips to prevent cancer; given informational materials; etc.
- Cancer Research Institute
681 Fifth Avenue
New York, NY 10002
1-800-99-CANCER or 1-800-992-2623
www.cancerresearch.org
Basic research that will yield break-through findings in cancer immunology; provides source of public information on cancer immunology and cancer treatment.
- Gilda's Club
322 Eighth Avenue, Suite 1402
New York, NY 10001
1-888-GILDA-4-U
www.gildasclub.org
The mission of Gilda's Club is to provide meeting places where men, women and children living with cancer and their families and friends can join with others to build emotional and social support as a supplement to medical care. Free of charge and nonprofit, it offers support and networking groups, lectures, workshops and social events in a nonresidential, homelike setting.
Depression (Also, see section on Mental Illness)
- Depression Evaluation Service
212-543-5734
Outpatient antidepressant medication clinical research for persons to Age 65.
- Late Life Depression Service
212-543-5825
Outpatient clinical research for elderly persons with depression.
Diabetes
- American Diabetes Association
1701 North Beauregard Street
Alexandria, VA 22311
1-800-342-2383
www.diabetes.org
The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy.
- DiabetesMonitor.com
www.diabetesmonitor.com
Monitors diabetes happenings on the internet.
- Diabetes123.com
www.diabetes123.com
On-line diabetes information with chat rooms and message boards.
- Juvenile Diabetes Research Foundation International
120 Wall Street
New York, NY 10003
1-800-533-CURE (2873)
www.jdf.org
The world’s leading non-profit, non-governmental funder of diabetes research.
- Joslin Diabetes Clinic
One Joslin Place
Boston, MA 02215
1-617-732-2400
www.joslin.harvard.edu
Affiliated with Harvard Medical School. Website is a comprehensive source of diabetes information.
Heart Disease
- Heart Fund (American Heart Association)
1-212-661-5335 or 1-800-242-8721
This organization raises funds for scientific research and refers people to support groups, etc.
- American Heart Association
7272 Greenville Avenue
Dallas, TX 75231
1-800-AHA-USA-1 or 1-800-242-8721
www.americanheart.org
New York City Region:
122 East 42nd Street
New York, NY 10168
1-212-878-5900
www.americanheart.org
A national voluntary health agency whose mission is to reduce disability and death from cardiovascular diseases and stroke.
Kidney Disease
- National Kidney Foundation
30 East 33rd Street
New York, NY 10016
1-800-622-9010
www.kidney.org
A major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.
- Kidney Neurology Foundation
1-212-629-9770
Callers are provided with physician’s names, nutritional counseling, social workers, and brochures.
Memory Loss
- NYSPI-Memory Disorder Center
1051 Riverside Drive
New York, NY
1-212-543-5853
Provides comprehensive diagnosis for persons with memory loss over the age of 45. Services are available within the five boroughs.
- North Manhattan Community Information Center on Memory
Ft. Washington Houses Senior Center
New York, NY
1-212-927-5600
Provide numerous services such as transportation, food preparation for those with memory loss.
- Community Caregiving
Ft. Washington Houses Senior Center
New York, NY
1-212-927-5600 Ext. 21
Provide social, recreational activities, transportation for persons with or at the early stages of Alzheimer’s. (Services provided from 155th Street to 215th Street.)
Mental Illness
- National Alliance for the Mentally Ill
2102 Wilson Blvd., Suite 302
Arlington, VA 22201
1-800-950-6264
Information on mental illness and individual and family referrals to local support groups
- National Institute of Mental Health ()
6001 Executive Blvd, Room 8184, MSC 9663
Bethesda, MD 20892-9663
1-866-615-6464
www.nimh.nih.gov
Part of National Institute of Health (NIH).
- National Mental Health Information Center
P.O. Box 42557
Washington, DC 20015
1-800-789-2647
www.mentalhealth.org
- Internet Mental Health
www.mentalhealth.com
From Canada, a valuable encyclopedia of mental illnesses, treatment, medications and research.
- Service Program for Older People (SPOP)
188 West 88th Street
New York, NY 10024
1-212-787-7120
A community-based mental health agency providing individual counseling, group counseling, assessment and service coordination, medication management, support groups, home visits, education, and bereavement support. To be eligible must be 55 and older living on the West Side between 59th and 125th Streets.
- The Bridge, Inc.
248 West 108th Street
New York, NY 10025
1-212-663-3000
Provides a comprehensive program serving men and women in recovery from serious mental illness. Their services include a Continuing Day Treatment Program, over 300 residential beds, vocational programs, educational programs, health care services, mental health clinic, MICA treatment, and special programs for homeless or persons with HIV/AIDS.
Multiple Sclerosis
- National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
1-800-FIGHT-MS
Local NYC Chapter: 212-463-7787
www.nmss.org
www.nationalmssociety.org
Provides support groups, educational programs, recreational programs, crisis intervention, and other services.
- Multiple Sclerosis Association of America
706 Haddonfield Road
Cherry Hill, NJ 08002
1-856-488-4500
www.msaa.com
Parkinson’s Disease
- Parkinson’s Disease Foundation
710 West 168th Street
New York, NY 10032
1-800-457-6676
www.pdf.org
- National Parkinson’s Foundation, Inc.
Bob Hope Parkinson’s Research Center
1501 N.W. 9th Avenue ?Bob Hope Road
Miami, Florida 33136
1-800-327-4545
www.parkinson.org
- American Parkinson’s Disease Association
1-718-981-8001
Supplies people with educational literature on Parkinson’s Disease.
Stroke (Also, see section on Heart Disease)
- National Stroke Association
9707 East Easter Lane
Englewood, CO 80112
1-800-787-6537
A leading resource for stroke information. Their mission is to reduce the incidence and impact of this life-threatening medical condition.
- The Internet Stroke Center
www.strokecenter.org
Comprehensive information on strokes including glossary of terms and a full listing of Web site stroke resources.
- Northern Manhattan Stroke Club
710 West 168th Street
New York, NY
1-212-305-1702
A resource center for stroke victims and caregivers that provides stroke outreach groups, lectures, bilingual activities, and educational programs.
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